Edge Hill University
Growing up with a chronic illness- kudos.pdf (170.8 kB)

Growing up with a chronic illness

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posted on 2020-11-05, 17:34 authored by Bernie CarterBernie Carter, Karen Ford, Lucy BrayLucy Bray, Janine Arnott, Cassandra Tichanow, Annette Dickinson

This study brings the children's perspectives and opinions about growing up with a chronic illness to the fore. It explores how they define and see themselves as children first and foremost and choose not to be defined by the symptoms and challenges of their illness. They know that they are different to their friends who do not have a chronic illness but they state that their illness is 'not who they are'.